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CDE Detailed Report | NINDS Common Data Elements These 12 domains were found to be unidimensional and responsive to change . sex). PDF Measuring health-related quality of life after stroke: A ... Stroke -Specific Quality of Life Scale. Measuring quality of life in people with aphasia: The Stroke Specific Quality of Life Scale. Stroke. Two thirds of all deaths related to stroke in the world occur in low- and middle-income countries. (Stroke-Adapted Sickness Impact Profile-30) to 78 (Stroke-Specific Quality of Life Scale). Hilari, K. and Byng, S. (2001). OBJECTIVE: To examine the measurement properties of a short version of the Stroke-Specific Quality of Life Scale (SS-QoL-12). Buy products to support Physiopedia and it's mission to educate the global physiotherapy and physical therapy community. English SS-QoL 2.0 was first adapted to Yoruba language by including Yoruba culture . primary caregiver) [3]. Background and purpose: Stroke has an effect on many aspects of quality of life (QoL) and therefore it is important to measure the magnitude of the impact. Methods Secondary analyses of three different studies. Translations. In consequence, the first Spanish-language scale for evaluating the quality of life (QL) of stroke survivors was developed (ECVI-38). Quality of Life Measurement in Neurodegenerative Conditions. Background. Ten of the twelve domains correlated moderately (ρ> 0.35) to strongly (ρ> 0.5) with . Setting: A stroke unit that provides acute care and rehabilitation for stroke patients in Frederiksborg County, Denmark. Methods Secondary analyses of three different studies. Find it on PubMed Psychometric properties of the Brazilian version of the stroke specific quality-of-life scale: Application of the rasch model. Background and purpose: The Stroke Specific Quality of Life Scale (SS-QoL) is a well validated measure of health related quality of life in patients with stroke, but with 49 items its length is a disadvantage. Psychometric evidence is necessary to establish scientific integrity and clinical usefulness of translations and cultural adaptations of the Stroke-Specific Quality of Life (SS-QoL) scale. Validation of the Stroke Specific Quality of Life Scale (SS-QOL): Test of reliability and validity of the Danish version (SS-QOL-DK). Stroke Impact Scale (SIS) 94 1 2 4 4 4 1 4 4 Stroke Rehabilitation Assessment of Movement—Mobility Subscale (STREAM) 95 3 3 3 3 3 3 3 3 Stroke Rehabilitation Assessment of Movement—Limb Subscales (STREAM)95 4 4 4 4 4 4 4 4 Stroke-Specific Quality of Life Scale 94 1 1 2 1 2 2 2 2 Introduction. Completion of the questionnaire takes took about 15 min. International Nursing Review59, 274-280. Methods: A prospective cross-sectional study, included 80 stroke patients, was conducted in the Neurology department at King Fahad Hospital of the University (KFHU), Khobar . 3, 2010, pp. It comprises comprised 49 items in 12 domains, with two subscores and a total score. Background and purpose Disease specific quality of life measures have been validated for patients with ischaemic stroke and intracerebral haemorrhage, but not for patients with aneurysmal subarachnoid haemorrhage (SAH). Lin, K. C., Chang, Y. F., Wu, C. Y., & Chen, Y. Stroke is a leading cause of activity limitation and participation restriction that negatively affect health-related quality of life (Duncan et al. The SS-QoL has been validated and transculturally adapted for Brazil ( 15 ); it has 49 items in 12 domains, varying from 49 to 245 points, with . A short version of the SS-QoL was developed and tested here. The aim of this study was to validate the Stroke Specific Quality of Life (SS-QoL) scale for patients with SAH. SS-QoL scores were different between groups opposed by their modified Rankin score at enrolment or their overall quality of life compared with pre-stroke status (p < 0.001). Completion rates are suboptimal and could relate to test burden. . Factor analysis individualized eight homogenous axes. 36. Methods: Secondary analyses of three different studies. Background: The Stroke Impact Scale (SIS) is a stroke-specific, quality of life measure recommended for research and clinical practice. Disease-specific Quality of Life Measure: Stroke-specific Quality of Life Scale (SS-QOL) Chinese Version . Stroke-Specific Quality of Life (SS-QOL) scale, version 2.0, by Williams et al. The objective was to examine the validity and reliability of a Norwegian version of the 12-domain Stroke-Specific Quality of Life scale. Wolf Motor Function Test Literature search did not reveal new psychometric data available for the following four measures: 1. Google Scholar. Health and Quality of Life Outcomes 9:5. 2011: 95-113. Stroke-Specific Quality of Life (SS-QOL) Scale is one of the commonest disease-specific quality of life measures initially developed and validated for ischemic stroke patients. Background and purpose The Stroke Specific Quality of Life Scale (SS-QoL) is a well validated measure of health related quality of life in patients with stroke, but with 49 items its length is a disadvantage. related QoL has been evaluated, the disease-specific Stroke Specific Quality of Life Scales (SS-QOL) scale has been used frequently (9,18,19,20,21). It measures energy, family roles, language, mobility, mood, personality, self care, social roles, thinking, upper extremity function, vision . Multiple Sclerosis Quality of Life (MSQOL)-54 Instrument For Further Information, Contact: Barbara G. Vickrey, MD, MPH UCLA Department of Neurology C-128 RNRC; Box 951769 Los Angeles, CA 90095-1769 Voice: 310.206.7671 Fax: 310.794.7716 Stroke and Aphasia Quality of Life Generic Scale-39 (SAQOL-39g) is a disease-specific questionnaire that measures HRQOL of patients with stroke. Trunk Impairment Scale . Iranian Journal of Neurology, 14(2), 94-100. 1999; 30: 1362-1369. 21, no 7, p. 620-7 Article in journal (Refereed) Published Abstract [en] OBJECTIVE: To test the reliability and validity of the Danish version of the Stroke Specific Quality of Life Scale version 2.0 (SS-QOL-DK), an instrument for evaluation of health-related quality of life. Items in the American version of the Stroke Specific Quality of Life (SS‐QoL) Scale are developed with help from patients with stroke and include even language impairments. Crossref Medline Google Scholar; 9 Williams LS, Weinberger M, Harris LE, Clark DO, Biller H. Development of a Stroke-Specific Quality of Life Scale. Design: A correlational study. Therefore, it is very important to use specific instruments for measuring quality of life in individuals who suffered a stroke. If you are unsure about which response to give to a question, the first response you think of is often the best one. A stroke-adapted 30-item version of the Sickness Impact Profile to Assess Quality of Life (SA-SIP30). This study was conducted to adapt the preliminary . Crossref Medline Google Scholar Stroke Impact Scale Stroke Specific Quality of Life . Find it on PubMed. Each domain is measured by three to six items using a 5-point (1 . The SS-QoL is an instrument specifically used to assess health-related QoL among individuals who experienced stroke. Physiopedia articles are best used to find the original sources of information (see the references list at the bottom of the article). In most cases Physiopedia articles are a secondary source and so should not be used as references. 2002). We are currently running a medium scale study (80 participants) which aims to explore the HRQOL of people with long-term aphasia and to assess the psychometric properties and the acceptability of the Stroke Specific Quality of Life Scale (SS-QOL) (Williams et al. Domains rated as most affected vary across studies, with . 2.5. Existing stroke-specific scales were developed in English-speaking countries and most of them do not satisfy the necessary standards of validity. International Journal of Language & Communication Disorders, 36(2), pp. responsive stroke-specific quality of life (SS-QOL) mea-sure, designed for use in stroke clinical trials. One trial (41 participants) reported quality of life using the Stroke Specific Quality of Life Scale. 2) Limitations in social activities because of physical . Trunk Control Test. It stems from a study called the Medical Outcomes Study. The aim of this study was to validate the Stroke Specific Quality of Life (SS-QoL) scale for patients with SAH. Development of a stroke-specific quality of life scale. Cambridge University Press, New York. This study aimed at the cross-cultural adaptation of SS-QoL 2.0 to Yoruba, the indigenous language of south-western Nigeria, and to carry out an initial investigation on its validity. Aim: To test the reliability and validity of the Turkish version of the Stroke‐Specific Quality of Life Scale (SS‐QOL). RESEARCH ARTICLE Comparison of construct validity of two short forms of Stroke-Specific Quality of Life scale Chia-Yeh Chou1,2, Chien-Yu Huang3, Yi-Jing Huang2, Gong-Hong Lin2, Sheau- Ling Huang2,4, Shu-Chun Lee2,5, Ching-Lin Hsieh2,4,6* 1 Department of Occupational Therapy, College of Medicine, Fu-Jen Catholic University, New Taipei City, Taiwan, 2 School of Occupational Therapy, College of . The aim of this study was to develop a psychometrically validated Spanish version of the Newcastle stroke-specific quality of life measure (NEWSQOL). 11 consists of 49 items covering 12 domains: Mobility, Energy, Upper Extremity Function, Work and Productivity, Mood, Self-Care, Social Roles, Family Roles, Vision, Language, Thinking and Personality. Here the . Tardieu Spasticity Scale (Modified Tardieu) 34. Methods Data were obtained from a previous validation study of the original 49-item SSQOL in 263 patients. The short version was developed using data from 141 patients with . Objective: To test the reliability and validity of the Danish version of the Stroke Specific Quality of Life Scale version 2.0 (SS-QOL-DK), an instrument for evaluation of health-related quality of life. Background: Stroke causes a wide variety of clinical manifestations that may have a negative impact on quality of life. 435-43. The 9 included articles assessed 7 different PROMs: EuroQol 5D (EQ-5D), Health Utility Index (HUI), mRS, Quality of Life after Brain Injury overall scale (QOLIBRI-OS), Subarachnoid Haemorrhage Outcome Tool (SAHOT), Stroke-Specific Quality of Life scale (SS-QoL), and the short version of the SS-QoL. The scale for trouble getting out of a chair based on Stroke Specific Quality of Life Scale (SS-QOL). DESIGN: Self-report survey of patients with mild to moderate upper extremity dysfunction. Items in the American version of the Stroke Specific Quality of Life (SS-QoL) Scale are developed with help from patients with stroke and include even language impairments. 2000; Mayo et al. 6 of 141 www.ebrsr.com Orpington Prognostic Scale Stroke Rehabiliation Assessment of Movement Six Minute Walk Test Timed Up and Go Wolf Motor Function Test Purpose. This study was aimed at cross-culturally adapting SS-QoL 2.0 . . spasticity), activity limitations (e.g. French validation of the Stroke Specific Quality of Life Scale (SS-QoL). This study assessed the test-retest reliability, internal consistency, convergent . 80% of cases are also know as a "schemic stroke", or the formation of a blood clot in a vessel supplying blood to the brain. In the UK, stroke is the third most common cause of death and the main cause of acquired disability. Approximately 130,000 individuals experience a first-ever stroke per annum.In addition to widely applicable pharmacological treatment for acute stroke, effective prevention and rehabilitation . It comprises 36 questions which cover eight domains of health: 1) Limitations in physical activities because of health problems. Book Chapter in Jenkinson C, Peters M, Bromberg MB (eds). A. It has been reported that assessments made with disease-specific scales measure the patient's physical functions (PF) and well-being better than generic scales because The short version was developed using data from 141 patients with . Stroke-Specific Quality of Life Scale was initially generated and constructed by identification of the 12 commonly affected domains in poststroke patients in 1999 . I will read out each question to you, along with the response options. 28 Muus, I. , Williams, L. S. , & Ringsberg, K. C. (2007). "Psychometric Comparisons of the Stroke Impact Scale 3.0 and Stroke-Specific Quality of Life Scale." Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, vol. Background and purpose The Stroke Specific Quality of Life Scale (SS-QoL) is a well validated measure of health related quality of life in patients with stroke, but with 49 items its length is a disadvantage. Effects of constraint-induced therapy versus bilateral arm training on motor performance . Stroke Specific Quality of Life Scale (SS-QOL) - getting out of chair mobility scale : SSQOLGetOutChairMobScale : The scale for trouble getting out of a chair based on Stroke Specific Quality of Life Scale (SS-QOL). Objectives: To assess the overall and domain-specific quality of life (QOL) in post-stroke patients using the stroke-specific quality of life (SS-QOL) scale and to identify variables that may affect the QOL after stroke. Lin, Keh-Chung, et al. PRO. NEWSQOL could also be used as a means of improving health professional / patient communication. The Stroke Specific Quality Of Life scale SS-QOL: It is a patient-centered outcome measure intended to provide an assessment of health-related quality of life (HRQOL) specific to patients with stroke only. Lin, K.-C., Fu, T., et al. 20. US Agency for HCP&R by . However, the limited evidence on psychometrics of Yoruba version of SS-QoL 2.0 (SS-QoL(Y)) is a significant shortcoming. The aim of this research was to develop and test a briefer stroke-specific HRQoL . et al 46 Indian Journal of Pharmacy Practice, Vol 11, Issue 1, Jan-Mar, 2018 to assess their quality of life using Stroke specific QoL scale and Barthel index. Among these tools is the Stroke-Specific Quality-of-Life (SSQOL) scale, which was developed as a compre-hensive measure of multiple effects in poststroke patients. Background and purpose: Stroke has an effect on many aspects of quality of life (QoL) and therefore it is important to measure the magnitude of the impact. This study assessed the test-retest reliability, internal consistency, convergent . driving), restricted social participation and quality of life (e.g. The Stroke Also called a "brain attack" and happens when brain cells die because of inadequate blood flow. () It includes 12 domains that cover traditional health-related QOL topics (e.g., social and psychological measures) and stroke specific topics (e.g., language, mobility, vision, and upper . 86-91.doi: 10.3109/13682820109177864 Psychometric evidence is necessary to establish scientific integrity and clinical usefulness of translations and cultural adaptations of the Stroke-Specific Quality of Life (SS-QoL) scale. The Stroke-Specific Quality of Life (SS-QOL) scale [18] additionally covers domains related to fatigue, personality change, and vision. 2007 (English) In: Clinical Rehabilitation, ISSN 0269-2155, E-ISSN 1477-0873, Vol. (2010). Internal consistency was acceptable (α= 0.65-0.91), except for the Personality domain (α= 0.58). median Stroke Impact Scale score (range) 17 (0вЂ"64) for example, a score of say 6 from complete data is not the same as a score of 6 from incomplete data. Stroke Impact Scale; Stroke Specific Quality of Life; See the full 141 page review. Purpose This study compared the responsiveness and criterion-related validity of the Stroke Impact Scale (SIS) and Stroke-Specific Quality of Life Scale (SS-QOL) for More Specific Quality Of Life scale (SS-QOL) is a . The Stroke Specific Quality of Life 2.0 (SS-QoL 2.0) is a widely used scale that has been cross-culturally adapted to many languages including Yoruba, one of the three major Nigerian languages. Semi-Structured Scale for the Functional Evaluation of Hemi-inattention Single Letter Cancellation Test (SLCT) Six-Minute Walk Test (6MWT) Star Cancellation Test Stroke Aphasic Depression Questionnaire (SADQ) Stroke Arm Ladder Stroke Impact Scale (SIS) Stroke Specific Quality of Life Scale (SS-QOL) Stroke-Adapted Sickness Impact Profile (SA-SIP30) 1999) as a single measure for the assessment of HRQOL in this population. 3 translation (s) Bibliographic reference (s) of the original questionnaire. Quality of life is an important patient-centred outcome after stroke since stroke can affect not only physical but cognitive, language, emotional and social functioning. Waters E, Shelly A, Davis E. Chapter 9: Condition-specific instruments to measure the Quality of Life (QOL) of Children and Adolescents with Cerebral Palsy (CP). The short version was developed using data from 141 patients with . The scale consists of 49 questions grouped into 12 domains [13]. VO2 Max To develop a comprehensive stroke-specific patient-based measure so that the impact of neuroprotective drugs and other therapeutic interventions on quality of life (QoL) can be fully assessed; to facilitate the assessment of post-stroke QoL in clinical practice. 19, no. Non-availability of SS-QoL 2.0 in Hausa, the indigenous language of Northern Nigeria has restricted its use in Hausa stroke-survivors (SSV). Please choose the answer that appears most appropriate. Original language (s) English for the USA. Aims: To translate and culturally adapt the American SS‐QoL . Introduction [edit | edit source]. Revista Brasileirade Fisioterapia, 12, 149-156. The Burden of Stroke Scale, Stroke Impact Scale and Quality of Life Index all contain 64 items and the Instrument for Young Hemorrhagic Patients contains 54 items. Of the stroke-specific scales, the Stroke-Specific Quality of Life Scale (SS-QOL) , in addition to the Stroke Impact Scale version 3.0 (SIS 3.0) , is the most comprehensive and frequently used patient-reported outcome measure [16-19]. The following questions ask how you feel about your quality of life, health, or other areas of your life. Stroke. We are currently running a medium scale study (80 participants) which aims to explore the HRQOL of people with long-term aphasia and to assess the psychometric properties and the acceptability of the Stroke Specific Quality of Life Scale (SS-QOL) (Williams et al. Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. The 36-Item Short Form Survey (SF-36) is an oft-used, well-researched, self-reported measure of health. QOL has also become more important with improvements in medical treatments and . Objective: To test the reliability and validity of the Danish version of the Stroke Specific Quality of Life Scale version 2.0 (SS-QOL-DK), an instrument for evaluation of health-related quality of life.. Design: A correlational study.. Recommendations during this phase include management of specific losses and limitations that arise following a stroke (include: cognition; communication; continence) and contain recommendations for specific impairments (e.g. About Press Copyright Contact us Creators Advertise Developers Terms Privacy Policy & Safety How YouTube works Test new features Press Copyright Contact us Creators . Methods Cross sectional survey of 141 aneurysmal SAH patients. "Psychometric comparisons of the Stroke Impact Scale 3.0 and Stroke-Specific Quality of Life Scale." Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation 19(3): 435-443. Methods Cross sectional survey of 141 aneurysmal SAH patients. METHODS: The construct validity and reliability was examined using the Rasch model; the . This study compared the construct validity of 2 short-forms of the 12-item-SSQOL (not the 12-domain-SSQOL). The Chinese version has had been previously validated in a local SAH population . 9 hole peg test 2. S t r o ke S p eci f i c Q u al i t y of L if e S ca l e (S S - QOL) Scoring: each item shall be scored with the following key Total help - Couldn't do it at all - Strongly agree 1 The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. Multiple Sclerosis Quality of Life Inventory 287 - 292 X X X Multiple Sclerosis Spasticity Scale (MSSS - 88) 293 - 297 X X X Neuropathic Pain Scale 298 - 303 X Nottingham Sensory Assessment 304 - 309 X Patient‐specific Functional Scale 310 - 315 X X The prevalence of stroke survivors with incomplete recovery in society has been estimated at 460/100,000 people, and one third of them require help in at least one daily activity. The SSQOL questionnaire has been translated into Danish and Ger- 33. The scale domains and items were derived from a series of interviews with post-stroke patients. Stroke specific quality of life questionnaire: Test of reliability and validity of the Persian version. Background No studies have compared the 2-factor structures of Wong's and Post's versions of the short-form Stroke-Specific Quality of Life (i.e., 12-item SSQOL) scale. Background: Stroke is a leading cause of activity limitation and participation restriction that negatively affect health . A short version of the SS-QoL was developed and tested here. Outcome Measures in Stroke Rehabilitation pg. Stroke Speci!c Quality of Life Scale (SS-QOL) Scoring: each item shall be scored with the following key Total help - Couldn't do it at all - Strongly agree 1 A lot of help - A lot of trouble - Moderately agree 2 Some help - Some trouble - Neither agree nor disagree 3 A little help - A little trouble - Moderately disagree 4 35. Background and purpose Disease specific quality of life measures have been validated for patients with ischaemic stroke and intracerebral haemorrhage, but not for patients with aneurysmal subarachnoid haemorrhage (SAH). Hakverdioğlu Yönt G. & Khorshid L. (2012) Turkish version of the Stroke‐Specific Quality of Life Scale. Patients: A total of 126 patients provided 252 observations before and after treatment. Stroke 1999; 30:1362-9 (Full text article) However, the limited evidence on psychometrics of Yoruba version of SS-QoL 2.0 (SS-QoL(Y)) is a significant shortcoming. Objectives: To assess the overall and domain-specific quality of life (QOL) in post-stroke patients using the stroke-specific quality of life (SS-QOL) scale and to identify variables that may affect the QOL after stroke. Stroke-Specific Quality of Life (SS-QOL) Scale is one of the commonest disease-specific quality of life measures initially developed and validated for ischemic stroke patients. The Stroke-Specific Quality of Life scale (SSQOL) was developed in 1999 as a patient-centered outcome in stroke research to replace the use of more generic quality of life (QOL) measures. There is a paucity of stroke-specific instruments to assess health-related quality of life in the Norwegian language. The certainty of evidence was very low. A disadvantage is subject burden and a short form is more practical to use in clinical and research setting. A Structured process was followed for obtaining permission from hospital authority The induced hypertension group had a median of 47 points (interquartile range 35 to 55) and the no-intervention group had a median of 49 points (interquartile range 35 to 55). 1999) as a single measure for the assessment of HRQOL in this population. Quality of life (QOL) is a multidimensional concept that measures a person's wellbeing. 1997; 28: 2155-2161. A short version of the SS-QoL was developed and tested here. (2009). To evaluate QoL, we applied the Stroke Specific Quality of Life Scale (SS-QoL). SS-QoL scores were different between groups opposed by their modified Rankin score at enrolment or their overall quality of life compared with pre-stroke status (p < 0.001). The discussion and use of QOL as a measurable outcome in health has increased in recent decades as healthcare has shifted from a disease-focused biomedical model to a more holistic, well-being focused biopsychosocial model. Setting: A stroke unit that provides acute care and rehabilitation for stroke patients in Frederiksborg County, Denmark. The objective of the present work was to assess the reliability and validity of the previously translated Spanish . Methods: A prospective cross-sectional study, included 80 stroke patients, was conducted in the Neurology department at King Fahad Hospital of the University (KFHU), Khobar . Stroke-Specific Quality of Life 2.0 (SS-QoL 2.0) scale is used widely and has been cross-culturally adapted to many languages. Stroke is a leading cause of mortality and morbidity worldwide. A disadvantage is subject burden and a short form is more practical to use in clinical and research setting. Thus, for the 12-item Chinese version of SSQOL-a one item is selected from each of the 12 domains of the . The first steps in this process are described here, including (1) the development of items and domains with the use of quali-tative data from stroke survivors and (2) initial reliability, validity, and responsiveness data from the first patient ObsRO: SS-QOL Proxy version. 20% of cases are a hemorrhage in the brain caused by a rupture or leakage from a blood vessel.

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